Wednesday, January 28, 2009

Ayden's Follow-up

Ayden had his second follow up visit with the cardiologists.  We were a bit worried the AV Fistula wasn't quite doing what we had hoped as Ayden has been complaining of being tired, his coloring was still blue/purple and he was starting to complain of pain in his left hand whenever he got cold.  I knew the fistula was maturing as I could see the veins surfacing and feel the murmur as well as hear it.  
To my surprise Dr. Cowley thought he looked great and let me know my expectations were still that of a Fontan, however he didn't know what to say about the pain in his hand. To Ayden's excitement he told him he could get off his oxygen and quit taking his furosemide..  He could still definitely use the extra oxygen but the little guy hates it so much that he deserves a break after being on it since February of last year.

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